TEST SUMMARY

What follows is a brief synopsis of the tests that have been done so far along with the results I've been told. I didn't include blood work here (too many to count) but my CPK level has been within normal limits.


May 2000:

Pain symptoms began in my arms in ONLY the bicep muscles roughly two weeks after being put on Zocor.



Feb 2001:

EMG and Nerve Conduction test; Pensacola Naval Hospital; results mildly abnormal.



Apr 2001:

Ischemic Forearm Test; Pensacola Naval Hospital; results - High lactate. That ruled out McArdle's Disease and a few others which would have shown no lactic increase if positive.

Note from Oct 2004 - What might be of interest is that my ammonia level was 11 at rest and only 18 after the exercise. It should have gone up 4 or 5 times the resting level if what I've read about this test is correct. This would be a positive test result for Myoadenylate Deaminase Deficiency.



Oct 2001:

Biopsy of both bicep muscles; Keesler Air Force Base Hospital; results - Atrophy of the small muscle fibers. Supposedly the tissue was received thawed at AFIPS and refrozen. I've had other docs tell me that the results weren't reliable because the sample was thawed during shipment. They also said there was no reason to biopsy both arms at once. Some labs won't even accept thawed samples for testing.



Nov 2001:

This is when the major leg/hip involvement happened.



Feb 5th, 2002:

EMG and Nerve Conduction Test of my whole right side; West Florida Medical Center; results - mildly abnormal.



Feb 14th, 2002:

MRI of brain and cspine; Eglin AFB Hospital; results - unremarkable. The Air Force lost the films on the way to Walter Reed. Also, it was supposed to be a color-enhanced MRI. A detail someone overlooked.



Feb 25th, 2002:

Evoked Response Test; West Florida Medical Center; results - mildly abnormal.



Feb 26th, 2002:

Nerve Conduction Test; West Florida Medical Center; results - mildly abnormal.



Mar 12th, 2002:

Urine Organic Acid Screen; West Florida Medical Center; results - They didn't freeze the sample first so the results were invalid.

Pyruvate Lactate Ratio Test; West Florida Medical Center; results - They didn't do the ratio test, but what they did do showed low activity, whatever that means.



Apr 11th, 2002:

Sensory Nerve Action Potentials; Walter Reed Army Medical Center; results - Normal.

Motor Nerve Studies; Walter Reed Army Medical Center; results - Normal.

F-Wave Studies; Walter Reed Army Medical Center; results - Normal.

EMG; Walter Reed Army Medical Center; results - Normal.



Jun 18th, 2002:

Needle EMG; University of Alabama Hospital; results - Normal.



Jul 8th, 2002:

Muscle biopsy, left thigh; University of Alabama Hospital; results - Normal.

My Rheumatologist referred me for mitochondrial testing and all the Alabama Hospital ordered was a Myoglobinuria Myopathy Profile (which we never suspected in the first place), vice mitochondrial testing. It's a good rule-out given my symptoms, but that's NOT what my doctor ordered. Mitochondrial testing is in a world all it's own and normally requires a fresh biopsy study for diagnosis. Don't take my word for it, check out http://www.umdf.org. Any info you need about mitochondrial disorders is there.



Nov 13th, 2002:

Mental Health Screening; Eglin AFB Hospital; results - It was felt that no major psychiatric issue is at play here. No change to current medication deemed necessary.



Feb 25th, 2003:

Lab workup for heavy metal poisoning; West Florida Medical Center Clinic; results - Negative.



Mar 6th, 2003:

MRI of hips and thighs. This time the dye was used. Fort Walton MRI. Results - Marbleized pattern of apparent partial fatty replacement of the musculature of the glutes, hamstrings, and to a lesser degree the quadriceps. Becker Muscular Dystrophy (BMD) was mentioned in the report. Dr. Vandenberg would like another biopsy for confirmation.



Apr 1st, 2003:

Muscle biopsy, left hamstring; West Florida Hospital; results - Normal for the stains they used. We ruled out glycogen and lipid storage diseases, along with inflammatory myopathies that were tested for before.



Nov 17th, 2003:

My doctor at the Muscular Dystrophy Clinic in Boise is teetering on a Mytochondrial Myopathy diagnosis but would like to have a more definitive muscle biopsy done first. The problem is finding a metabolic lab that can do the appropriate testing that is within my insurance provider network.



Dec 28th, 2004:

After having multiple symptoms commonly associated with prostate enlargement, I saw my PCM and had a complete exam and lab work up done. Results - normal. I noted on multiple web sites that these symptoms can be caused by metabolic disease so that's probably what's happening. I also had the FTA-ABS lab done as a rule out and it came back negative.



Apr 8th, 2005:

Muscle needle biopsy, right thigh; St. Luke's Hospital; results - Click HERE to view the results. Looks like I may have at least one more biopsy in my future. I'm thinking I need to go to the lab in Oregon and let them take normal biopsy samples, vice the needle type I had done here in Idaho.





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